Friday, July 17, 2015

Bryan Update!

Bryan has now been our son for NINE MONTHS!!

How is THAT possible?!

Bryan is doing AMAZINGLY well! He loves playing with his siblings. He is getting stronger. He is a good eater - although he is still 29 pounds - but he has grown 2 inches since he came home. Bryan is an easy going, happy child - we are so blessed! He can understand what we say - but understanding his speech is hard (we catch maybe 25%?). He isn't  potty trained yet - we tried a bit this summer and decided to wait a bit longer.


 Bryan LOVES playing outside and will frequently get his siblings to push him up and down the driveway in this little car :)


 Since Bryan's speech is coming a little slow he had a hearing test just to rule out a hearing issue and thankfully passed just fine! We will give him a few more months at home before we start speech therapy.

We are still waiting on insurance approval for genetic testing.

We are still waiting to hear back from the dental department to find out where Bryan will best be treated for his extensive dental work.


 Look who is using his walker ON the wood chips!!


 Bryan is able to walk around the playground to each of the places he wants to play! Freedom for him - and mom and dad :)


 Bryan is even getting strong enough to use his walker on the grass a little bit - assuming it is flat and cut :)


Bryan was THRILLED to take a kayak ride with Jamma! He was SO excited to ride on a BOAT!


Bryan's first time playing on the beach!

He LOVES the water and the outdoors!


Bryan playing at the sprinkler park. He is getting really good at using his walker and walked ALL over!


and the BEST for last....

Bryan LOVES swimming!

Bryan had a few aqua therapy appointments before vacation. With Jamma's help he has turned into a fish! He LOVES the water!! 

AND it is soooo good for his muscles/core strength!

Luckily Jamma is a fish too so she takes the kids swimming almost daily during our vacation month - win win - since cold water and bathing suits are not my idea of a vacation!

Blessings, Sandy

Monday, July 13, 2015

Standing is Stupid!



I *love* this blog post! 

It is a quick read and I encourage everyone to read it - especially those parenting a child with a special need.

It is only natural to get excited when Bryan takes a few independent steps.....but I have always felt it was a little bittersweet when the kids and I get so excited and cheer him on.

On one hand - it is EXCITING and Bryan is EXCITED to be walking....

On the other hand is it really "everything"?! What if he never walks independently? And we have put so much emphasis on walking.....

Does it mean Bryan has less value? Does it mean we love Bryan any less?

We LOVE Bryan just the way God CREATED HIM!

Blessings, Sandy

Sunday, May 31, 2015

First Dentist Appointment


Bryan had his first dental appointment this week. 

He did REALLY well - he cooperated for everything including x-rays!

but.....turns out he has EIGHT CAVITIES :(

including THREE teeth that need root canals and crowns :(

This really isn't unusual based on having spent his first 4 years in an orphanage...

but Darren came home with GREAT teeth and we had hoped the same for Bryan.

Oh - my poor sweet Bryan....so much dental work is no fun :(
(I was hoping he might be able to get it taken care of in the hospital - all at once - and where he wouldn't remember it, but it doesn't look like our insurance covers such treatment)

Please pray for Bryan - that he would be in no pain while we get our insurance coverage figured out (he may have to wait until January for treatment)....and that he won't have a negative dental experience.

Bryan just LOVES playing outside!

Did I mention how much I just LOVE this sweet boy?!

Bryan definitely has MY HEART!

 and I thank God daily for opening up my heart/allowing me to LOVE Bryan as my own!

Blessings, Sandy

Saturday, May 23, 2015

BIG Day!


Bryan had his BIG appointment today. The one where he sees his neurologist, physical - medicine - and rehab. doctor, and PT all at the same time. 

And....He ROCKED it!

They were IMPRESSED BY HOW WELL HE IS DOING!!

Although he is still a MYSTERY - they are leaning AWAY from SMA!! and towards polio or another virus that effected his nerves and muscles.

They think he is getting STRONGER!!

They think he is asymmetric - which would again rule OUT SMA!!
(Although they do admit they know almost nothing about Distal SMA which is what they have suspected he has.....)


He WALKED AROUND THE ROOM WITH HIS WALKER - like a BOSS!!

The HOPE in that room was PALPABLE!!

PRAISING GOD FROM WHO ***ALL*** BLESSING FLOW!!!

Bryan starts additional PT in June....Aqua Therapy - how COOL is that?!

Also in June we FINALLY have our appointment with genetics.

Feeling hopeful and resting in the HOPE given by Jesus, Sandy

Friday, May 15, 2015

Mother's Day



Last year I received THE BEST MOTHER'S DAY GIFT *EVER*!!!

This picture - 

of the son we were waiting for, dreaming of, praying for, tackling a mountain of paperwork for....


And THIS YEAR - my first Mother's Day as a MOM to EIGHT blessings!

Blessings, Sandy

Monday, April 27, 2015

Our Sweet Boy!


This boy gives THE BEST snuggles! I get kisses, hugs, and LOTS of love on a daily basis - I am so BLESSED!


Bryan tried this new toy at PT last week. I am not sure what it was called (anyone know?) - but it worked on his core strength (this is all assuming we can build core strength). Bryan's legs had to be tied together so his feet wouldn't fall off. He did really well and had fun riding it!

The PT tested Bryan's quad muscles on his right (weaker) leg. Only two of them responded so she recommends he continue wearing an AFO on his right foot/leg (not a shorter brace) since he tends to walk on the outside of that foot. She gave us an insert to wear in his left shoe. Shoes are still hard - as they have to be HUGE to fit over the AFO (so VERY heavy) and without the AFO he falls off the shoe really unnaturally stretching his ankles.We tend to keep him in slippers (Robeez). 

Bryan continues to take more steps independently each week - but only if he is wearing his slippers. With the AFO and shoe his balance must be off.

Blessings, Sandy

Tuesday, April 21, 2015

Fun Outside!

Bryan's first trip to the park!

He LOVED these spinning cups!


Bryan and Darren had fun on the see-saw!


Bryan had fun digging in the sand - actually he did better than I thought he would do!

And then we had a FEW days of warm weather....so we got to play in our new and improved yard (that the kids say is like a playground now!)


Play Structure (thanks Grandma and Grandpa K.)....with a new slide (thanks Jamma)


 A new sand box - perfect size for two little fellows!


Swings!


And a new disc swing (thanks Jamma!)

Blessings, Sandy